The Ark

Whatever floats your boat...

They aren't going to help me.
I so appreciate everyone's concerns and prayers.
We now have no choice but to move to Germany where at least I won't have to work.

Thanks again for everything. I'm going to be out for a while.
Much love,
Amy

P.S. I'm sorry I got everyone's hopes up. Dr. Lisker-mehlmann assured me I was on the list.
He was wrong.
**************************************************************************************************************
*****************Update - 11/13***********************
Ugh. Did I really post that title? *sigh*. I sincerely apologize for the emo-ness. I told myself I wouldn't do that. The doctor who told me I was on the list called me and told me he wasn't done fighting for me *skeptical face* and he wants me to come back within 2 weeks to speak with another hepatologist and surgeon. Also, I received a call on Thursday reporting that I had a new prescription waiting for me at the pharmacy to throw on my drug pile. I am finally on the drug, Octreotide, that I was supposed to be on 8 months ago through the Mayo Clinic. I'm very tired from the roller-coaster ride and I need some time to adjust to all this but I will keep you all updated. Again- thank you for all the love and support. It is anything but virtual.
Much love,
Amy

P.S. oh yeah,...and I spelled Lisker-Melman wrong.

Views: 52

Comment by jessicapeanut on November 10, 2010 at 1:53pm
I am so sorry. My heart is breaking. Much Love to you Amy<3
Comment by Geoff on November 10, 2010 at 2:13pm
Amy, I am so mad and so sorry.
Comment by lima on November 10, 2010 at 2:15pm
I did a search on best healthcare in the world and Germany beats the US big time! I am going to continue to keep you in my thoughts and prayers. Dr. Lisker sounds like somebody that needs a good lecture. I am just really sorry Amy, I wish I could fix this for you.
Comment by deepinthewoods on November 10, 2010 at 2:19pm
Oh Amy. Sorry to hear that and thinking of you. xxx
Comment by S.A. Murray on November 10, 2010 at 2:44pm
I am sorry to hear this. I hope and pray that Germany finds you well and you continue to stay in contact with us here. (((AMY)))
Comment by NatureJunkie on November 10, 2010 at 3:36pm
This is NOT all!

I'm furious. This catch-22 with regard to transplant eligibility is unacceptable. There have been transplants performed for others with PLD, and I'm going to do more research to try to find out what qualified them outside of their MELD score. I know you're tired, but I'm not, and I'm pissing mad on top of it. I'm not giving up for you yet.
Comment by Chig on November 10, 2010 at 7:51pm
@Lima.... ouch I heard that. (really it is a reflection on the data that is pulled)
@ Amy.... damn it again! Refer to this.

Life No E from Peter Adams on Vimeo.


Alternate version back on until you learn better.
Comment by Chig on November 10, 2010 at 7:55pm
Thumbs up on the tag.
Comment by photo2010 on November 11, 2010 at 1:04am
I am so sorry this has happened. This is one reason I gave up on doctors for years. Only recently have I been trying to get help again because of pain and becoming bedridden to a large degree. I agree with That Girl, getting legal representation might be a good idea. There is no excuse for what this doctor did. Don't give up please. Hugs
Comment by AnnelidaFilms on November 11, 2010 at 2:07am
Amy, my heart breaks for you and John. And for the rest of us whose frustration and anger - though far less than yours - is nonetheless real. You still seem to have a ray of hope, and we're all with you in spirit. Love...

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