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PCLD Files- 1

Disregard the part that says I'm on the list. I got my rejection notice today, Wenesday, Nov. 10th. They don't seem bothered that I'm starving to death or have debilitating pain. My liver is still functioning. They've scripted me an experimental cancer drug and told me to come back in 6 months.
Thank you for all the love you've been sending. There's no quantifying how much it's meant to me. Be well and enjoy your health to the fullest, Please.

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Comment by JustAnotherUserName on November 4, 2010 at 7:55am: I had polycystic ovaries and my ovaries (usually almond sized) ended up the size of grapefruit. The weight of the sheets was painful, so I can't even begin to imagine what it is like to have that sensation throughout your torso.

Much love being sent to you and John. I'm sure it's no picnic for him, either.

Comment by Marie on November 4, 2010 at 9:07am: ♥

Comment by S.A. Murray on November 4, 2010 at 7:52pm: I've only just met you here and can't express how sorry I am to hear about this. I'm hoping your prayers are answered soon.

Comment by John Frenken on November 5, 2010 at 3:50am: Dear Amy, i have got little tears in my eyes and if it is possible i want to help you.
I am thinking of you and john every day. We do wish you luck.
Susanne and the other John.

Comment by Victoria on November 6, 2010 at 10:41am: Hi Amy ~
You may be in the unlucky 8% by you're in the top 1% in the realm of the human spirit. I'm in awe of your strength and candor in sharing the reality of this cruel disease. Congrats on making the transplant list. If only more people understood the huge need for organ donation, there wouldn't be this tug of war.

I hang out w/my Dad at dialysis and witness first hand the people struggling and waiting for their turn at a new start in life. My brother had liver disease, so I have a sense of what you're going through. You're one tough lady.

(So in agreement about the excuse for food we are consuming. Soy, corn syrup and gluten... along with GMO .... are compromising our organs and ability to digest food. My 26 year old niece was just diagnosed with Crohn's Disease. Unbelievable. We are going holistic in treatment.)

Comment by deepinthewoods on November 8, 2010 at 8:44am: Brave to do this Amy. All our wishes for a much better tomorrow.

Comment by jessicapeanut on November 10, 2010 at 1:47pm: I am so sorry you are going through this. It sounds so painful. I'm sending you positive energy Amy. You are loved by so many people. I can tell you are a fighter and I believe you will beat this. Hugs Amy<3

Comment by Chig on November 10, 2010 at 10:00pm: That is not a rejection letter.... that is motivation. right?

PCLD Files- 1

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