PCLD- Food

Comment by NatureJunkie on October 26, 2011 at 6:39pm

I feel so damn lucky that, so far, my diet isn't limited in any way by health issues. When I read about people like Roger Ebert and some others I've heard about who have a condition that will not allow them to eat at all for the rest of their lives, it makes me appreciate how precious the gift of life is, that people who have to give up one of life's greatest pleasures still find it worthwhile. I guess they have to relish the pleasure they still find in other things, and I'm sure that must be your coping strategy too. I'm keeping the faith that you will one day be well enough to enjoy some of your favorite foods again.

Comment by Marie on October 27, 2011 at 7:19am

♥

Comment by ThatGirl on October 27, 2011 at 1:05pm

Although you manage your diet like you manage your whole lifestyle to maintain your function as well as you can, I wish for you to dig into food in the future without having to prethink everything. I know with disease (winky wink), we have to prethink and preplan always, but to just be able to eat portions that would satisfy and not be met with rejection or complications after, seems a small thing to ask for,, but a thing i REALLY think you will get...soon...soon.

its tough as you say, NOT to cheat when you are restricted for years, or a lifetime, but you are being reasonable. a taste or chocolate, a few sips of coffee...sometimes are necessary when just the scent is NOT enough.  Just as I am able to eat more, you can eat less,,,i want to pound on something!!..you are a MODEL patient...and a patient model patient..and my hero still. You are fighting the fight, when other people don't fight as hard ...or unfortunately dont get any time at all to fight.  you' re in the GAME girl...

 

didn't want to reply before Pyper but i did...

Comment by BlancheNoE on October 27, 2011 at 9:40pm

@NJ- I'm keeping the faith too, NJ and I've actually learned to cook some delicious stuff for dinners. I'm not really as deprived as it sounds like in the vid. It's more about avoiding 5 or 6 key things and of course everything has to be in small amounts. 3 years ago when I was able to work out hard, I ate enough for 3 people and never gained weight. Now that I'm eating like a bird but not working out I've actually gained it but I don't know how much of that is liver weight. I've had doctors guess everywhere from 12 to 30 so we won't know for sure until it's "birthed".

@Marie- I felt that !

@ TG- I'll get there. I'm certain of it. Pypers probably off on one of her tours and I'm sure she wouldn't mind.

I don't.

Comment by Pypermarru1 on October 29, 2011 at 10:53am

Holy Shit Woman.  That is a horrible way to have to live.  I don't mean to be all negative-I'm just being honest.  I guess you have no choice - but I don't think that would make it any easier to bear.

Sorry it took me so long to see the video - I've been anti-computer and pro-reading lately.  I can't put the books down.  I talked to NJ last night and she mentioned the ARK - I'm glad she did or it would have been another week before I put the books down...ha

Part of the joy of life, at least for me, is eating and socializing with friends.  It's an eye opener to see the side effects of this bastard disease - things that the rest of us don't consider.

Watching this video has made me put into perspective my complaining concerning my diet to lose weight.  I don't think I'll bitch as much when I have to say no to chocolate lava cake.....OK...let's keep it real, I'll stop bitching externally but internally I'm all upset :0)

Thanks for answering the food question.  Very eye opening.  How has Pen been with all these diet restrictions and chicken hating you've been doing?

Luv ya

Comment by BlancheNoE on October 29, 2011 at 11:05am

PYPER !,...HA,..I just sent you a message (or maybe it was a massage) on Vimeo before I came here so you can disregard that. I watched " Communication Breakdown " and it was very timely for me. I just had an incident with a dog in an electric fence. He had me pinned right at the sidewalk and  was viciously barking and how the fuck am I supposed to know there's an electric fence?....lady came out and yelled " JUST WALK AWAY "

I yelled back, " LADY I'm NOT MOVING, CALL YOUR DOG ",...she yelled back " IT'S AN ELECTRIC FENCE, JUST WALK AWAY",...I YELLED BACK " I'VE BEEN ATTACKED BEFORE AND I'VE SEEN DOGS GO RIGHT THROUGH THOSE THINGS, CALL YOUR FUCKING DOG",... she turned around and went inside and slammed the door. John went at the dog like he was going to attack it and it finally backed off. Not only was I paralyzed, I tensed up so bad from it that I felt like I'd been in a car accident the next day. I wish you'd been there to let me talk out my anger. I bought pepper spray for next time,....for the dog or the lady,...whichever.

Communication breakdown inDEED !

Love you.

Comment by BlancheNoE on October 29, 2011 at 11:14am

OH,..and as to pen, I keep him fat and happy. He eats what I eat for dinner except for 1 or 2 nights a week when he makes his own and it doesn't bother me anymore to have whatever in the pantry. Honestly, I don't feel that deprived.

Comment by Chig on October 29, 2011 at 5:15pm

I'm waiting for the Lt.'s video response in which he eats the souls of children.  Then I recalled, he does entertainment, not documentaries.   

You know if you run out of chocolate, they will light bags of poop on fire at your door step, don't you?   But enough about the "Occupy BlancheNoE" movement.  Besides, I have no idea how those gun toting  grotty soiled drawer wearing knuckle dragging knee biters got your dox in order to camp outside your bathroom window.    Send some banana hurl in their general direction if they get out of hand.

Pepper spray?  Childsplay!  Strap on a car battery in a back pack with a super conductive coil and a pair of jumper cables next time the lady with the dog pays you a visit.  Give her a jump and say "Now THERE is an electric fence." 

Comment by spacemonkey1310 on October 30, 2011 at 8:35am

Man it sucks that this is what you have to go through. I hope it all gets better soon. Much love ; )

Comment by BlancheNoE on October 30, 2011 at 3:30pm

@ Chig- I know you know that I don't want to hurt the dog. Any normal person when asked to call their dog would do so immediately. This woman is a classic bully and it was obvious from her expression that she was deriving a sick sense of self satisfaction at watching me squirm. You bet your bippy I'd like to give her a jolt or 3 or 27. My sister installed an electric dog fence years ago and I  shamed her into decommissioning it. One of her dogs stayed inside of it but the other learned very quickly that if he charged through it he only suffered a second of pain before he was free. He "jumped" it all the time. Now she just lets them out in the big fenced backyard only, which is what she should have been doing all along.

@ Tim- Hey Tim ! You know, our mailmen carry dog biscuits for the the dogs and squirrels. I had forgotten about that and I think we'll do that from now on. Thanks ! (...and thanks for reminding me that I'm not missing much with the chicken)

@ Christine- YAY ! It's always an honor to see you, Ma'am. I can't eat much fruit because of the acidity. My stomach is smashed flat by my liver so any stomach acid gets shot right up my esophagus which is not designed to tolerate acid. I already had esophageal ulcers forming when they "found" my giant liver. Preserves seem to have less acid due to the cooking process so I eat a bit of those every couple of weeks. Yum.

@ Space- Thanks, Space. It will and I will be MUCH more appreciative of SO many things for having gone through it.

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