Comments - I'm posting this blog in case something bad happens. - The Ark2024-03-29T06:37:32Zhttp://lovevideoplayhouse.ning.com/profiles/comment/feed?attachedTo=2426069%3ABlogPost%3A51232&xn_auth=noI, too, think Ruth's advice i…tag:lovevideoplayhouse.ning.com,2009-04-08:2426069:Comment:516482009-04-08T09:02:03.121ZJimhttp://lovevideoplayhouse.ning.com/profile/Jim
I, too, think Ruth's advice is worth following, especially the part about taking back control of your life. Best of luck, Kevin, and please keep us posted.
I, too, think Ruth's advice is worth following, especially the part about taking back control of your life. Best of luck, Kevin, and please keep us posted. @Ruth..Thank you for all the…tag:lovevideoplayhouse.ning.com,2009-04-07:2426069:Comment:515142009-04-07T08:30:45.312Zphoto2010http://lovevideoplayhouse.ning.com/profile/Kevin
@Ruth..Thank you for all the great advice. I am taking in everyone's suggestions and considering a plan of action. xo<br />
<br />
@NatureJunkie..Procuring an advocate who is effective is unfortunately not a simple matter. I have been working on this for a long time. Even attorneys who supposedly specialize in eldercare have been rude and dismissive to me. I greatly appreciate your concern. :)
@Ruth..Thank you for all the great advice. I am taking in everyone's suggestions and considering a plan of action. xo<br />
<br />
@NatureJunkie..Procuring an advocate who is effective is unfortunately not a simple matter. I have been working on this for a long time. Even attorneys who supposedly specialize in eldercare have been rude and dismissive to me. I greatly appreciate your concern. :) Wow, Ruth, all of that makes…tag:lovevideoplayhouse.ning.com,2009-04-07:2426069:Comment:514942009-04-07T03:27:24.794ZNatureJunkiehttp://lovevideoplayhouse.ning.com/profile/Robin
Wow, Ruth, all of that makes a lot of sense. I've been looking back in on Kevin's blog to see if anyone had helpful advice for him, because I'm concerned for him but I had nothing helpful to offer (sorry, Kevin!). But all of that sounds very practical. Kevin, I think that along with Chig's advice to procure an advocate, Ruth's plan sounds pretty darn good.
Wow, Ruth, all of that makes a lot of sense. I've been looking back in on Kevin's blog to see if anyone had helpful advice for him, because I'm concerned for him but I had nothing helpful to offer (sorry, Kevin!). But all of that sounds very practical. Kevin, I think that along with Chig's advice to procure an advocate, Ruth's plan sounds pretty darn good. Hi Kevin...If it were me I'd…tag:lovevideoplayhouse.ning.com,2009-04-06:2426069:Comment:514022009-04-06T14:09:09.821ZJustAnotherUserNamehttp://lovevideoplayhouse.ning.com/profile/JustAnotherUserName
Hi Kevin...If it were me I'd first contact the guy's boss at the building and explain what's been going on. Leave nothing out. Tell him you want to fire them but you're afraid.<br />
<br />
I'd also consider reporting the cell phone stolen (then you don't have to pay the early termination fee, but the provider will turn it off) and changing the locks (your building should help you here since it's their employee you're afraid of). Remove them from your insurance and ask for your car keys back. If they don't…
Hi Kevin...If it were me I'd first contact the guy's boss at the building and explain what's been going on. Leave nothing out. Tell him you want to fire them but you're afraid.<br />
<br />
I'd also consider reporting the cell phone stolen (then you don't have to pay the early termination fee, but the provider will turn it off) and changing the locks (your building should help you here since it's their employee you're afraid of). Remove them from your insurance and ask for your car keys back. If they don't give them to you, call the police and report the car stolen. Don't lend them any more money. Don't expect repayment, either, unless it's a large amount. Then there are other remedies available to you.<br />
<br />
In Florida, where I used to live, and here in California, the the Department of Children and Families also oversees the welfare of the elderly. Rather than focus on the disability aspect, you're more likely to get assistance for her if you focus on that aspect. You will end up benefitting from some of that, in addition to the fact that they will be able to hook you up with other services you may be entitled to.<br />
<br />
I would then call the local vo-tech school and see if they have a job board where the student nurses check for work. I would also post an ad on Craigslist (make up a hotmail or google address so your "real" one doesn't get clogged up), describe the position, ask specific questions they must answer via email, and get at least three verifiable references. Post that the job pays $12/hr or whatever you can afford to pay. Require that they have their own car and cell phone.<br />
<br />
In short, you must take control of your own life back. You have the brains and the means to do it. If you have people that can help you, ask them! But you must get this couple out of your life!!<br />
<br />
Remind me again of your city so I can do some local checking around.<br />
<br />
Hang in there :-)<br />
<br />
xo<br />
Ruth @Chig..Thanks for looking up…tag:lovevideoplayhouse.ning.com,2009-04-05:2426069:Comment:512952009-04-05T20:13:39.048Zphoto2010http://lovevideoplayhouse.ning.com/profile/Kevin
@Chig..Thanks for looking up that info. I'll check it out. I have spoken to the local "disability advocate", and it was not helpful. What you state: "It became clear to me that there is a lot of run around on the web for the disabled community.", is accurate, and applies to local and state agencies as well. There is no cohesive overseer that I have found yet.<br />
I do have some people that I will involve if/when I make a change in service. Thank you for your concern and help.
@Chig..Thanks for looking up that info. I'll check it out. I have spoken to the local "disability advocate", and it was not helpful. What you state: "It became clear to me that there is a lot of run around on the web for the disabled community.", is accurate, and applies to local and state agencies as well. There is no cohesive overseer that I have found yet.<br />
I do have some people that I will involve if/when I make a change in service. Thank you for your concern and help. @Suze..I feel bad burdening e…tag:lovevideoplayhouse.ning.com,2009-04-05:2426069:Comment:512912009-04-05T20:02:43.450Zphoto2010http://lovevideoplayhouse.ning.com/profile/Kevin
@Suze..I feel bad burdening everyone with my problems. Thank you for your concern. I'm going to look into those organizations.
@Suze..I feel bad burdening everyone with my problems. Thank you for your concern. I'm going to look into those organizations. @Christine..I will have to lo…tag:lovevideoplayhouse.ning.com,2009-04-05:2426069:Comment:512892009-04-05T19:58:08.491Zphoto2010http://lovevideoplayhouse.ning.com/profile/Kevin
@Christine..I will have to look into things like you suggest. Most of the available help of that nature seems geared toward the indigent..but it's worth a look. :)
@Christine..I will have to look into things like you suggest. Most of the available help of that nature seems geared toward the indigent..but it's worth a look. :) @Syd..You're right, it is a h…tag:lovevideoplayhouse.ning.com,2009-04-05:2426069:Comment:512872009-04-05T19:50:30.076Zphoto2010http://lovevideoplayhouse.ning.com/profile/Kevin
@Syd..You're right, it is a huge national problem that is being swept under the carpet. Those who get the best care are the rich, and at the other end of the spectrum, the totally indigent are afforded some government assistance, but not great by any means. If you fall somewhere in the middle, where most of us are, good luck, you're pretty much on your own. Some people are lucky and find help who are reasonable and safe, but that's rare. This is going to be a national crisis as the population…
@Syd..You're right, it is a huge national problem that is being swept under the carpet. Those who get the best care are the rich, and at the other end of the spectrum, the totally indigent are afforded some government assistance, but not great by any means. If you fall somewhere in the middle, where most of us are, good luck, you're pretty much on your own. Some people are lucky and find help who are reasonable and safe, but that's rare. This is going to be a national crisis as the population ages..it probably is one already.<br />
<br />
I didn't realize that Torigirl35 had such difficulties with her helper. She shows and talks about her current helper in many vids..is that the person who has left her alone? I actually have considered capturing some of my conversations with our helpers..I may do that.<br />
<br />
I am sorry in many ways that I didn't 'prepare' somehow for this eventuality. But we were not taught about this stuff growing up.<br />
<br />
Thanks for your comments Syd. :) Hey Kevin. Your situation rem…tag:lovevideoplayhouse.ning.com,2009-04-05:2426069:Comment:512592009-04-05T17:11:04.829ZSydTheSkeptichttp://lovevideoplayhouse.ning.com/profile/SydTheSkeptic
Hey Kevin. Your situation reminds me a lot of what Torigirl35 has had to endure for years! She's made lots of vlogs about her helper and how she's tried so hard to find better care but there's not a lot of people looking for such low-paying jobs in her area and she gets no assistance from the state even though she's home-bound and unable to even sit up for long periods of time.<br />
<br />
Her helper sometimes doesn't show for days leaving Tori without food or assistance and she's actually caught her on…
Hey Kevin. Your situation reminds me a lot of what Torigirl35 has had to endure for years! She's made lots of vlogs about her helper and how she's tried so hard to find better care but there's not a lot of people looking for such low-paying jobs in her area and she gets no assistance from the state even though she's home-bound and unable to even sit up for long periods of time.<br />
<br />
Her helper sometimes doesn't show for days leaving Tori without food or assistance and she's actually caught her on tape being verbally abusive toward her.<br />
<br />
This is most likely a much bigger national issue than we think it is. It's horrible that on top of everything else you have to deal with, you have to feel unsafe in your own home simply because you have no means to afford proper care. It's friggin' pathetic, really, that our society devalues human life in such a way.<br />
<br />
I'm so very sorry for your troubles...