The Ark

Whatever floats your boat...

They aren't going to help me.
I so appreciate everyone's concerns and prayers.
We now have no choice but to move to Germany where at least I won't have to work.

Thanks again for everything. I'm going to be out for a while.
Much love,
Amy

P.S. I'm sorry I got everyone's hopes up. Dr. Lisker-mehlmann assured me I was on the list.
He was wrong.
**************************************************************************************************************
*****************Update - 11/13***********************
Ugh. Did I really post that title? *sigh*. I sincerely apologize for the emo-ness. I told myself I wouldn't do that. The doctor who told me I was on the list called me and told me he wasn't done fighting for me *skeptical face* and he wants me to come back within 2 weeks to speak with another hepatologist and surgeon. Also, I received a call on Thursday reporting that I had a new prescription waiting for me at the pharmacy to throw on my drug pile. I am finally on the drug, Octreotide, that I was supposed to be on 8 months ago through the Mayo Clinic. I'm very tired from the roller-coaster ride and I need some time to adjust to all this but I will keep you all updated. Again- thank you for all the love and support. It is anything but virtual.
Much love,
Amy

P.S. oh yeah,...and I spelled Lisker-Melman wrong.

Views: 52

Comment by LtAdams2247 on November 11, 2010 at 3:00am
*nods* getting out of a system that forces you to work while you're dying sounds like a pretty good idea. I know a woman who's barely worked 6 consecutive months in her life and is in expensive medical care since 2006 all payd for by social security. You're married to a German, so get some if the good stuff.

Adams Flag
Comment by LtAdams2247 on November 11, 2010 at 3:10am
One more thing. Being the person you are, where ever you may go on this planet, you won't be alone.
Comment by Chig on November 11, 2010 at 9:28am
http://www.photius.com/rankings/healthranks.html
The World Health Organization using someone's data pull. :-)
Of course this is the same WHO that had a global epidemic of H1N1 killing millions.
Its all about the data... and yet not. Click on the US to see why they are so low in the ranking and you shall see it is also about people who come to the system in their most vulnerable states and have to go through channels....
Comment by LtAdams2247 on November 11, 2010 at 12:49pm
@Chig: That list is 10 years old. I'm sure Slovenia has gotten past you by now ;-)
Comment by Victoria on November 11, 2010 at 5:14pm
I'm so sorry to hear this news Amy. A move is such an agressive step for you right now. Of course, if that's your only recourse then you must.

Is there anything we can do to advocate for you?
Comment by flophousepoodle on November 11, 2010 at 11:02pm
I am so sorry. My hopes for your return to health will never sink.
Comment by SydTheSkeptic on November 12, 2010 at 8:14am
No frackin' way!! This is crazy, Amy.
Comment by JustAnotherUserName on November 12, 2010 at 11:38pm
Yep...good ole USA. Best healthcare system in the world. NOT!

You'll love Europe. I'll come visit :-). Please don't lose hope. I love you.
Comment by John Frenken on November 13, 2010 at 4:38am
Godverdomese kut klotenzooi i àm pissed off the health system.
Next week we have the Biggist Fair of Medicine in Düsseldorf, and i want to try somebody wo can help you.
www.medica.de
Comment by BlancheNoE on November 13, 2010 at 7:22am
I can't say thank you enough. More later,...

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